Patrick and Farah Armstrong have teamed up with Jed and Hannah English to host this fun 4-man scramble tournament. Proceeds from the tournament will go to the National CMV Foundation, an organization very important to the Armstrong and English families.
The Armstrongs' Story:
We had never heard of CMV until one hour after our daughter, Madeline Leigh, was born on Jan. 31, 2014. There were no indications of a problem during my pregnancy and therefore we were shocked to learn that I had contracted a PREVENTABLE virus during my pregnancy that was so devastating to our baby. Maddie suffered hearing loss, brain calcifications, liver and spleen damage, and her cerebellum (the portion of the brain that controls coordinated movement) had only formed 10%. Maddie spent ten days in the NICU before we learned the devastating news that she was terminal. We made the gut-wrenching decision to bring her home on hospice care and Maddie passed away after two days at home. She was only 12 days old. We are passionate about raising awareness of congenital CMV in hopes of saving other families the heartache that we have endured.
The Englishs' story:
I had a routine and seemingly healthy pregnancy, so when Evan was born at full term weighing only 5 pounds we were afraid something was wrong. Evan had shown signs of distress through labor, and was born with neutropenia and a small petechia rash. After being admitted to the NICU, she continued to fail the newborn hearing screen in her right ear for 6 days; however, she was never tested for CMV and doctors were puzzled by her symptoms. It was only days after being discharged that the possibility of CMV was ever mentioned by her doctor. To say we were terrified is an understatement, but we were also angry that we were never made aware of this preventable virus and the devastation it can cause. Evan, now 1.5 years old, was diagnosed with congenital CMV at two weeks old. She was immediately started on a strong antiviral and successfully received a cochlear implant 6 months ago. Evan is such a strong girl who amazes everyone around her, but her diagnoses and learning about cCMV was incredibly difficult for us. We are driven and committed to fight for cCMV awareness, education, and a vaccination.
While the Armstrong and English families are our amazing co-hosts for this event - it's really about the entire CMV family. Each of the tournament's 18 holes will be dedicated to a CMV family. While each family may not be able to join us on the day, they will be spreading CMV awareness and fundraising to support this event within their own community.
To learn more about hole dedication and sponsorship opportunities email firstname.lastname@example.org.