Last year I ran in the NYC Marathon, raising money for the National CMV Foundation. This year I am a member of the first ever Compete 4 CMV Team at the 2018 TCS New York City Marathon to be held on Sunday November 4th.
Why am I running for the National CMV Foundation?
On 10/11/2004, in the front seat of our car en route to the hospital, I had delivered my son, Noah. Our Journey was just beginning. Noah was diagnosed with Congenital CMV immediately after birth. He participated in a trial for a new oral anti-viral drug (one of the first babies in the US). Followed were a myriad of MRI's, blood work and CAT scans. Noah failed the newborn hearing test. He has sensory neural hearing loss in both of his ears. He has however, flourished with hearing aids. Since then, Noah has been diagnosed with: microcephaly, cerebral palsy, seizure disorder, global developmental delays, right hemiparesis and feeding issues. He has had tendon transfer and lengthening surgery in his right leg. Noah has also dealt with fractures of his tibia and most recently his femur. He has taught all of us the true meaning of life and what is important. He overcomes so much everyday to do the things we take for granted. He never complains and is always smiling. Noah has always had boundless energy and motivation to accomplish whatever he wants. He does not know the meaning of "can't." He is just as excited as ever for the beginning of ski season, despite falling in January and breaking his femur, requiring surgery and a stay in rehab. I often look over at him in the rearview mirror of the car and am overcome by emotion as I see him smiling. Noah is so blessed with the ability to experience pure joy at all times. People can't help but smile at Noah; his energy, excitement, and joy for life are absolutely contagious. It is my hope that by sharing our story, we can spread awareness of this terrible virus.
Did you know 1 in 200 children is born with congenital CMV in the United States, making it the most common congenital viral infection affecting newborns? CMV can be transmitted to an unborn child by a pregnant mother experiencing a CMV infection, an often symptomless virus. Learn more about how CMV can affect your pregnancy and possible treatment options.
What is the NATIONAL CMV FOUNDATION INC:
Our mission is to educate women of child-bearing age about congenital CMV, so we may eliminate this devastating virus for the next generation of newborns.
EVERYONE can support the Compete 4 CMV - 2018 TCS New York City Marathon team! Make your gift today. Thank you!
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