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Strides 4 CMV

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Event Details
Strides 4 CMV - 5K

Run, Walk, Roll for Congenital CMV Awareness

Schedule of Events

When: Saturday, August 17, 2019 packet pick up and same-day registration will begin @ 8:15 a.m / 5k will begin @ 9 a.m.

Where: University of Minnesota Coffman Memorial Union Front Plaza

Parking and Transportation

By bus: check out the various routes that make this stop Stop Eastbound (Washington Ave & Coffman Union) Stop Westbound (Washington Ave & Coffman Union)

Metro Transit (for more information go to: https://www.metrotransit.org/university-of-minnesota)

By rail: take the Green Line to the East Bank stop; walk west two blocks towards Coffman Memorial

Parking: Limited metered/street parking is available in the surrounding area. Additionally, paid hourly parking is available at the following parking garages on campus: East River Road Garage, Weisman Art Museum Garage, Washington Ave Parking Ramp, Oak Street Ramp, or Northrup Garage. Please allow plenty of time to find parking and plan to arrive at the staging area by 8:30 am.

Note: from East River Road Garage, follow signs to Coffman Union. Coffman Union does not open until 9 am, so you will need to follow stairs around Coffman to the front of the building. Please note, for handicap-accessible parking, use the Washington Ave ramp (501 SE Washington Ave).

The nearest restrooms are in Coffman Union; Restrooms will be available starting at 9 a.m. when Coffman Union opens.

Start and Finish Line:  We will start and end at Coffman Front Plaza (just out the front doors of Coffman, facing Northrup and the light rail)

Weather: Its August in Minnesota, so be prepared to run in any weather.  We plan to run rain or shine; prepare for warm weather. If it is unsafe to run or if there are extreme conditions in the forecast, visit the Facebook event page or the event webpage.

Strollers are welcome, but please start at the back of the pack for safety.

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When
Saturday August 17th
8:15 AM
Where
Coffman Memorial Union, Washington Avenue Southeast, University of Minnesota - Twin Cities, Minneapolis, MN, USA
300 Washington Ave SE, Minneapolis, MN 55455, USA

Story

The Devereaux Family's story:

We had never heard of congenital CMV before our unborn child was diagnosed at 21 weeks gestation. We received 4 Cytogam infusions during the remainder of our pregnancy. Philippa "Pippa," was born at 34 weeks gestation, in 2015. Her current diagnoses include: intellectual disability, polymicrogyria, developmental delay, hearing loss, epilepsy. She is an extremely happy and sweet child. She is such a bright light for everyone that has the opportunity to know her. We are passionate about ensuring that all families learn about cCMV and how it can be prevented.

The Henrikson Family's story:

We started our journey with cCMV when our daughter Vivian was diagnosed at 2 days old.  Like many other families, we had never heard of cCMV and we were really intimidated by the unknown road ahead.  Vivian’s cCMV caused unilateral hearing loss, microcephaly, and cerebral palsy but luckily she was treated with antivirals right away to prevent further damage to her hearing.  She has had many doctor appointments, therapy and surgeries but despite all this, Vivian’s story is one of courage, strength and hope.  She is 5 years old and with her big beautiful smile and vivacious personality she is our daily inspiration and reminder of what hard work, determination and a positive attitude will get you.  She loves school, singing, dancing, riding her scooter and running with her friends and her brother.  This spirit has been contagious for our family, and one we are passionate about sharing with others.  We currently have a sponsored bill in front of the Minnesota legislature called the Vivian Act.  Once the bill is passed, it will bring much needed CMV awareness to families and medical providers across the state.

Posted by NATIONAL CMV FOUNDATION INC





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